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by way of briefly recounting our weekend. A preliminary bit of information to know is that there is a reason that Kali's visage looks a tad distorted (it seems only extremely familiar or visually perceptive persons are capable of noticing this). While preparing a load of old cruddy packing palettes and creosote (I think) timbers for the landfill on Wednesday morning, we inadvertently disturbed a yellow jacket burrow, resulting in Kali getting stung on the hairline of her forehead. Parents hate that kind of stuff. I'm pleased to see, however, that after the initial terror stage, she seems to take that kind of discomfort pretty well in stride.
For those of you who don't know, Seneca Rocks is just over the Allegheny Mountain from Harman, WV, where Janelle's mom was raised. Mom and Dad Myers keep a home there that has been a place of respite and hope for many. We were there this weekend with our good friends for a weekend of fun, food, swings, food, philosophizing, food, mutual support, food, mountain comforts, and food. We always eat well with their family.
As we prepare for Nora's first birthday coming up this October 30th, we can't help but feel some gratefulness for our freedom of movement, even while still missing her keenly. I don't know if "carefree" can ever describe our family again, simply because of the complicated emotions our journey of love and loss inevitably brings. In a way, that is a gift, since I feel the other side of that coin is that we don't take our health or freedom for granted nearly the way we used to. Always present in our minds, too, are those many families who are still searching out their own best paths as they live their days with unresolved questions about their beloved's genetic condition and potentials. While we don't have any magic to offer them, we feel compelled to apply what we've learned about community support in the face of living tragedy in making ourselves a practical resource for them.
A good weekend, and hopefully helpful in rejuvenating us for the Palliative Care retreat coming up soon, as well as Nora's birthday and a presentation we're making at our church Nov. 9, concerning our family's journey.
1 comment:
the first 2 pictures in the post are wonderful! The one of the three of you should be on your Christmas card (I especially love the cookie-coated tongue!). Glad you had a nice weekend. Looks gorgeous.
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